Marianas Variety

Last updateThu, 27 Jun 2019 12am

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    Wednesday, June 26, 2019-1:44:51A.M.

     

     

     

     

     

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NMI continues to support children with special healthcare needs

(Press Release) — The bleeding disorder team of the CNMI held a successful Family Camp the weekend of April 2 -3rd at Laolao Bay Golf Resort.

This invitation only event included all the patients diagnosed with bleeding disorders in the CNMI and their families. The event was sponsored by the Division of Public Health Services, Maternal and Child Health Bureau with support from NMC Nursing School and Marianas Health Services.

The conference focused on learning about the special healthcare needs of those with bleeding disorders in order to allow these patients and families to improve their nutrition, fitness, and overall health. Family members who attended the first annual bleeding disorder conference in December 2014 continued to build on what they learned during that time. It was an opportunity for networking among families including some newly diagnosed patients. A total of 34 patients and family members attended. The camp gave opportunities for the families to enjoy the outdoors and be active together as a family, which proved to be a memorable experience as the families spent time together on the driving range, on the golf greens, and in the conference venue. In addition, the families walked away from the conference with important resources for improving their health and felt empowered with knowledge about their disease. 100% of the overall participants were in agreement that they enjoyed attending the conference.

The CNMI Bleeding Disorder Team includes Dr. Tiffany Lin, Pam Carhill, and Susan Satur. Dr. Lin is the Department Chair of pediatrics at CHCC and is also a pediatric hematology/oncology fellow at University of California San Francisco. Pam Carhill is the physical therapist at Marianas Health and has long been involved with the bleeding disorder community of the CNMI. Susan Satur is a Social Worker Assistant at Marianas Health and provided much appreciated social work and community resource support.

This event would not have happened without the support of the following people: Andrea Carr, Physical Therapy Technician, Yoga and Pilates Instructor from Marianas Health services, Ronaldo and Andea Pasuyuin along with Hazel Mabasa who are Physical Therapy Technicians at Marianas Health Services, Tony Satur and Renuka Sapkota of Lao Lao Bay, Joe “Kamikaze” Camacho, and Let’s Move Marianas.

Lastly, special thanks to Ann Marie Satur who is the Children with Special Health Care Needs Coordinator at the Maternal Child Health Bureau who served as the chief organizer for this conference.

If you have a question about bleeding disorders or think you may have one, please see a primary care doctor. You can make an appointment at Children’s Clinic, Women’s Clinic or Family Care Clinic at 234-8950.